HSAN information and specialist-network participation
CMT-Austria
A cross-condition association with an HSAN-related information role.
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Regions
Europe
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Patient participation in a specialist network
Společnost C-M-T
A Czech CMT patient association participating in ENISNIP’s international HSAN/CIP research collaboration.
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HSAN IV Belgium: a family-founded patient organisation
HSAN IV Belgium
A family-founded group describing community connections, awareness, fundraising and research-support aims; its directory also includes support beyond CIPA.
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Differential diagnosis of neuropathies in children and adolescents
AWMF / Society for Neuropediatrics
A broader differential-diagnosis guideline that explicitly mentions HSAN IV / CIPA.
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Congenital Insensitivity to Pain - Epidemiology and Management
British Paediatric Neurology Association (BPNA) / BPNSU
A UK paediatric CIP study using clinician case reports and medical records; the project page includes NTRK1.
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Congenital Insensitivity/Indifference to Pain: information for families
Contact (Contact a Family)
A disease-information page and UK family-support route.
Publication review completeView record
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The research still has discovery and verification gaps. Record counts do not compare the quality of regional resources.