Scope & limitations
Recorded for its HSAN / ENISNIP role; the association as a whole is not a CIPA-specific organization.
About these terms
- HSAN IV
- Where a resource says HSAN IV, it usually means CIPA. MedlinePlus Genetics states that CIPA “is also known as hereditary sensory and autonomic neuropathy type IV”, lists HSAN type IV and HSAN4 as alternative names, and identifies NTRK1 as the gene involved.Based on: MedlinePlus Genetics, U.S. National Library of Medicine
Record details
- Source organization
- CMT-Austria
- Regions
- Europe
- Research record date
- 2026-09-21This is not the medical revision date.
- Publication status
- Publication review complete
Title, version & context
- Index title
- HSAN information and specialist-network participation
- Version & date
- No date is shown on the page; the website lists activities for 2026.
- Source title
HSAN - Schmerzunempfindlichkeitsstörungen
- Relationship to CIPA
- The project connection has been verified.
Reading notes
- Main audience
- Families of people with HSAN / CIPA, and patient organizations or researchers following collaboration in the European network.
- Resource purpose
- Read the association’s own account of its HSAN / ENISNIP role and of the information material and research contacts it says it can pass on to families.
The information material and research contacts have to be requested from the association, which states what it can provide; this does not indicate available treatment or funding.