CIPA.FYI
Patient organizationsEuropeEU04

Patient participation in a specialist network

A Czech CMT patient association participating in ENISNIP’s international HSAN/CIP research collaboration.

Scope & limitations

Aachen University Hospital links directly to the association. Its own remit is CMT; a dedicated CIPA handbook or CIPA-specific services have not been verified. CMT resources cannot be assumed to apply to CIPA.

About these terms

HSAN IV
Where a resource says HSAN IV, it usually means CIPA. MedlinePlus Genetics states that CIPA “is also known as hereditary sensory and autonomic neuropathy type IV”, lists HSAN type IV and HSAN4 as alternative names, and identifies NTRK1 as the gene involved.Based on: MedlinePlus Genetics, U.S. National Library of Medicine
CIP
Some resources use CIP (congenital insensitivity to pain) without the “anhidrosis” qualifier. Its scope is broader than CIPA, and this site does not treat the two as equivalent; where a resource is filed under CIP, its relationship to CIPA is stated in that record’s scope note.Based on: This site’s editorial handling (not a medical claim)

Record details

Source organization
Společnost C-M-T
Regions
Europe
Research record date
2026-09-21This is not the medical revision date.
Publication status
Publication review complete

Title, version & context

Index title
Patient participation in a specialist network
Version & date
EJP RD project records and the Aachen page available at the time of review.
Source title

Společnost C-M-T

Relationship to CIPA
The project connection has been verified.

Reading notes

Main audience
Families, patient organizations and researchers interested in collaboration.
Resource purpose
Use the Aachen institutional page to identify the Czech patient association’s role in ENISNIP.

Related resources

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