CIPA.FYI
Patient organizationsEuropeEU05

HSAN IV Belgium: a family-founded patient organisation

A family-founded group describing community connections, awareness, fundraising and research-support aims; its directory also includes support beyond CIPA.

Scope & limitations

VZW registration and funding delivery need independent verification. Reported fundraising and planned co-funding are distinct. The disease page is not treated as a professional care guideline, and not all listed resources are CIPA-specific.

About these terms

HSAN IV
Where a resource says HSAN IV, it usually means CIPA. MedlinePlus Genetics states that CIPA “is also known as hereditary sensory and autonomic neuropathy type IV”, lists HSAN type IV and HSAN4 as alternative names, and identifies NTRK1 as the gene involved.Based on: MedlinePlus Genetics, U.S. National Library of Medicine

Record details

Source organization
HSAN IV Belgium
Regions
Europe
Research record date
2026-09-21This is not the medical revision date.
Publication status
Publication review complete

Title, version & context

Index title
HSAN IV Belgium: a family-founded patient organisation
Version & date
The website was rechecked during this research round; the resources page does not state a revision date.
Source title

HSAN IV Belgium

Relationship to CIPA
Specifically focused on CIPA.

Reading notes

Main audience
Families and organizations seeking information about an HSAN IV patient group.
Resource purpose
Read the group’s account of its family background, activities and research-support aims; linked resources also cover other conditions and local family support.

Related resources

Resources →