Scope & limitations
The medical text is older and discusses CIP and several HSAN types separately. Its CIP sections must not all be applied to CIPA; statements about support groups do not establish the current global situation.
About these terms
- HSAN IV
- Where a resource says HSAN IV, it usually means CIPA. MedlinePlus Genetics states that CIPA “is also known as hereditary sensory and autonomic neuropathy type IV”, lists HSAN type IV and HSAN4 as alternative names, and identifies NTRK1 as the gene involved.Based on: MedlinePlus Genetics, U.S. National Library of Medicine
- CIP
- Some resources use CIP (congenital insensitivity to pain) without the “anhidrosis” qualifier. Its scope is broader than CIPA, and this site does not treat the two as equivalent; where a resource is filed under CIP, its relationship to CIPA is stated in that record’s scope note.Based on: This site’s editorial handling (not a medical claim)
Record details
- Source organization
- Contact (Contact a Family)
- Regions
- Europe
- Research record date
- 2026-09-21This is not the medical revision date.
- Publication status
- Publication review complete
Title, version & context
- Index title
- Congenital Insensitivity/Indifference to Pain: information for families
- Version & date
- The medical text is dated December 2012.
- Source title
Congenital Insensitivity/Indifference to Pain
- Relationship to CIPA
- Explicitly includes CIPA.
Reading notes
- Main audience
- Families, particularly readers looking for UK family support.
- Resource purpose
- Read an older CIP / HSAN introduction and find Contact’s family-support route.
The source page states that there is no support group specific to this condition. Contact provides general support and a helpline for families of children with any rare condition.